LETTER TO THE EDITOR OF THE WASHINGTON POST, 6-13-01, By email@example.com
``To Susan Oakie: Your article about the study reflects what the media is saying. [Mark S. Klempner and others, New England Journal of Medicine, 6-12-01]
However, they are missing the bigger problem. That problem is patients with Lyme who were misdiagnosed/not diagnosed for a decade due to the inaccurate tests that were available 10 year ago.
Of course in the beginning of the treatment you get sicker, there is a lot of dieoff and it is a known scientific fact called the Herxheimer reaction. I do not believe the studies are relevant to patients such as me that have had Lyme over 10 years and were not specifically treated for it because of the inaccuracy of the testing methods back then.
I am glad that they have found treatment that may help those who get bit today or just recently, but that does not necessarily mean that the long term antibiotics, and I am talking 6 mos. to 3 years and beyond for patients with Chronic Late Stage Lyme Disease. Please show me where those studies are and I would love to see the results.
The fact is that long term antibiotics, as per my definition above, do work on patients with Chronic Late Stage Lyme Disease and I have read nothing that proves otherwise. And when these spirochetes have run rampant for over 10 years in one's body, of course you have to get sicker before you get better, the dieoff alone proves that as in other illnesses.
I have several tests done recently, Western Blot, LUAT, plus others that show that I am not only positive for Lyme but also the co-infection Babesia. And as they say, hind sight is 20/20, and the symptoms that I have had for the past 10+ years, causing me to go on disability 6 years ago from a job that I loved and made good money at go right along with the diagnosis.
Where are the studies that show that long term antibiotics won't help me? And where are the researchers even talking to and reviewing the long term treatment that has helped many regain some of their life back ... ''